General Medicine

» MaryDeNeve - My Sister with MS

Thanks for sharing with me. Karen talked to her neuroligist about LDN and he said wouldn't prescribe it for her. I told Karen that you talked to your GP and he gave you a prescription. She's going to talk to her GP to see what he has to say.

We found an apartment for Karen that we really liked. It is within 20 minutes of my sister and I. We took Karen to see the apartment and could tell she wasn't excited. She's so stuck on her previous caretaker coming back to take care of her, but we have not received any assurance that she's willing to do this.
Tomorrow we're interviewing a woman who doesn't speak English well. We're already prepared for her saying she can't live with her.

I have spent so many hours these past few weeks researching apartments and my sister has done the same looking for caretakers. We feel defeated. Everything we propose to Karen is not good enough. She wants to be independent but she doesn't realize she has limited choices. All her wants are centered around Rose returning.

My other sister, Nancie, is meeting me at the nursing home tomorrow. She went through this with Karen seven years ago and talked about how angry she got with her. I think we have to be a little hard with her tomorrow. We are running out of time. We have people willing to help, but we can never commit because Karen keeps jerking us around.

I wrote an email today to the Daily Herald News expressing my frustrations with housing, health care, etc. I told them Karen's story and maybe it will trigger a response...

Not likely, but I want to start speaking out to anyone who will listen. Let's start taking care of the citizens of the U.S.
One small, positive note, Karen called and received her first shower in 8 years. Is that not sad?

Everyone take care. Keep the line open. I enjoy hearing from you.

-- posted by MaryDeNeve