General Medicine

» Jennifer Gerics - LDN

For anyone looking for information on LDN for MS, here is the latest statement from the National MS Society, which looks promising:

http://www.nationalmssociety.org/site/Pa...
Also, a new article from "Autoimmune Disorders" writer Elaine Moore, addressing the topic:
http://autoimmunedisease.suite101.com/ar...
And latest information on clinical trials that are under way:http://thecompounder.com/msnaltrexonetri...

Hopefully such trials will be successful and prove the drug safe for worldwide use. It's hard before new medications are studied because researchers don't know the long-term effects from such drugs, or which populations they are appropriate for. Tysabri sounded like a wonder drug until 2 people died after clinical trials, so now there are exceptions to who can take it. It needs to also be seen whether LDN works to prevent new attacks (disease-modifying), works to reduce or eliminate current symptoms, or (ideally) does both jobs. LDN sounds promising, and hopefully will be safe in the long run. If something is supposed to be a wonder drug, like LDN, it's important for it to be proven safe. The goal is EFFECTIVE and SAFE treatment, for the long run. Let's crosss our fingers!

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» Jennifer Gerics - LDN

In response to LDN posted by JenniferGerics:

Here's a post from someone using LDN for MS (she's responding to someone in the "MS Overview" discussion):

It has been a while since I've written on this site. I'm the angry daughter of a progressive MS patient who was diagnosed with MS myself. I am really sorry to hear about your sister and remember the frustration. I can honestly say that I truly understand what it feels like now. When you cannot provide for yourself and have to count on other people to do basic tasks for you it is NO FUN! You feel like a burden to those you love and useless to society.
I have been in your position and now her position. I know that trying to be patient with her is an over used statement for you, but that is my advise.

I also want to let everyone know that I have started LDN treatment. AND.........I FEEL GREAT!!!!!!!!!!!!!!!

No more spasams, numbness or fatigue! You would be crazy not to try this treatment. After all, what do you have to loose?
Before I started taking LDN, I was on several medications:

-Trazadone
-Welbutrin
-Rebif
-Immitrex
-Ritalin
-Flexril
-Topamax
and also tylenol or motrin for pain

After I started taking LDN, I no longer take ANY of these medications. It is true that medications have side affects. Maybe some of the meds your sister is taking is making her do and feel the things she is. I know that I was unhappy with the side effects I experienced with the meds I was on. I hope everything works out for you, as I am sure that it will.

On a lighter note, I am proud to be another LDN success story. Hopefully my path with MS will not follow my relatives. I can only cross my fingers and take every day as it comes. With LDN, I feel like I am able to have a more positive outlook for my future.

Wilburn in Ohio

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» dennise13 - LDN

In response to LDN posted by JenniferGerics:

Could you tell me how your nuro felt about you using LDN my son has just been told he has Ms has not seen Ms nurse yet but LDN looks better than other drugs and does it really work have been really angry with the doctors taking so long and my son had to go private in the end Thanks

-- posted by dennise13

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» Jennifer Gerics - LDN

In response to LDN posted by dennise13:

Hi Dennise---

I don't take LDN myself. A contributor here takes it, and posted that commentary. She doesn't post regularly, so she might not get back to you. How old is your son and has he been diagnosed with relapsing /remitting MS or progressive MS? Where do you live? What has your neurologist said about medications? Sorry for the battery of questions, but I'm not sure from your post how severe your son's case is. You should speak with your neurologist first about drug use. A good idea is to get an MS specialist. I made the mistake of seeing a general neurologist for a couple of years, and he couldn't even commit to an MS diagnosis. I had to go to an MS neurologist to get a definite answer. Please keep in mind that it's better for you and your son not to panic (I know that's very hard, since I feel like I panic every few months if something new happens to me!) Try to remain as calm as possible while going through this ordeal so you can soak up all the information the doctor gives you. A great website to visit is the National MS Society's, which gives info on symptoms, treatment, and recent medical advances: http://www.nationalmssociety.org/site/Pa...

Information on LDN is listed above at the 1st post to this discussion.

Please let me know what you find out from your doctor and also please don't panic because you need to think clearly for yourself and your son, and most importantly, MS is not a death sentence and not always a severe disease.

Sincerely,

Jennifer Gerics

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» dennise13 - LDN

In response to LDN posted by JenniferGerics:

Thank you for your message My son has started on LDN only 4 days ago already his bladder is feeling better, We have not been told what sort of Ms he has which is wrong, in fact his nuro is so hard to get hold of it seems a waist of time going to him he has just past him on to a Ms nurse, he was meant to start steroids last Sunday but we decided not to go down that road yet,only if really needed. I think he has the worst type as he has not stops getting symptoms for the start.We are hoping LDN works if It does not then we will have to think again but his bladder feeling better is a start. He is on 3mg at moment going up to 4 and a half in a month under Dr B Lawrence he seems really good and seems to care changing his diet and using vitamins, I am feeling much better than a few weeks ago and my son is more hopeful for the future I just hope it works we will have to find a doctor soon to get LDN on prescription in UK do you know any one that could help we live in Wales Thanks Denise

-- posted by dennise13

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» Jennifer Gerics - LDN

In response to LDN posted by dennise13:

Hi Dennise----

Sorry for the slow response, but I just got back from vacation and will post a response to your questions tomorrow. Thanks!

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» Jennifer Gerics - LDN

In response to LDN posted by JenniferGerics:

Hi Dennise. I would check out this link to find more information in the UK: http://www.mssociety.org.uk/. There are links to support and other necessary things. Perhaps they can recommend doctors.

It must be annoying being passed off to the nurse. The doctor should sit you guys down and explain a little more about what's going on. It doesn't sound like this doctor has any particular medication and treatment plan, which isn't right. It sounds like the UK prescribes LDN more freely than over here. I hope it helps your son and I'm glad things are a little better. Keep us updated!

Sincerely,

Jennifer Gerics

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» grtdane711 - New to LDN

I'm hoping to get a Rx for LDN the first of next month and I've been doing some research on the subject but I still have a question I can find an answer to. I have RR MS and take Rebif for it. I'm wondering if LDN works while taking Refib?
Any light you can shed on the subject would be appreciated.
Dane

-- posted by grtdane711

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» Jennifer Gerics - New to LDN

In response to New to LDN posted by grtdane711:

Hi---

To my knowledge, LDN isn't supposed to be taken with any of the disease-modifying drugs. I don't know the reason why, because I can't find a great deal of conclusive information at this point. But this is what I've heard.

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